Our names are Cathryn and Corynne Bouchard. We were diagnosed with a rare and deadly disease called Niemann-Pick Disease Type C (NPC) shortly after our 1st birthday. This disease took Corynne's life just before she would have been 20 months old, and Cathryn's life at 22 months old. We hope you will take a moment to read about this disease and how you can help stop this from happening to many other children like us who have received this devastating diagnosis.
NPC is a disorder affecting lipid metabolism (the breakdown and use of fats and cholesterol in the body), in a way which causes harmful amounts of lipids to accumulate in the spleen, liver, lungs, bone marrow, and brain. These substances are building up in our bodies every day. As the substances build up in our brains, they cause neurological problems that worsen with time. The disease has been likened to a "Childhood Alzheimer's" - robbing children of their minds and their lives. For Corynne and Cathryn, the storage of these substances in the lungs was the primary problem.
Currently there is no cure for NPC, and there is no standard treatment that has proven to be effective. This disease is always fatal. It is difficult to predict life expectancy for a person with NPC. In general, the earlier that a patient has neurological problems indicates that the patient will get worse more quickly.
There should never be no hope for children. That's why we hope that you will join our family in our Million Dollar Mission to support research for treatments and a cure for NPC.
Thank you for your generosity, love, and prayers.
Still fighting for a cure -
Sweet Angels Corynne and Cathryn
In Loving Memory of Cathryn and Corynne
Corynne Michelle: September 7, 2006 - May 4, 2008
Cathryn Elizabeth: September 7, 2006 - July 22, 2008
We do not need a special day to bring you to our minds.
The days we do not think of you are very hard to find.
Each morning when we awake we know that you are gone.
And no one knows the heartache as we try to carry on.
Our hearts still ache with sadness and secret tears still flow.
What it meant to lose you no one will ever know.
Our thoughts are always with you, your place no one can fill.
In life we loved you dearly; in death we love you still.
There will always to be a heartache, and often a silent tear.
But always a precious memory of the days when you were here.
If tears would make a staircase, and heartaches make a lane,
We'd walk the path to heaven and bring you home again.
We hold you close within our hearts; and there you will remain,
To walk with us throughout our lives until we meet again.
Our family chain is broken now, and nothing seems the same,
But as we are called, one by one, the chain will link again.
See our articles in the News
See our article in the Atlanta Journal Constitution: